I told dad earlier about my trip to the doctor. We joked lightly about it, because that's what we do, and I didn't go into serious detail, that will all come with time.
Just got off the phone with momma. That was hard. She's scared. She asked me about the prognosis very quickly, and it broke my heart to tell her that EDS gets worse, not better. Her little girl is sick and she couldn't hold her. That was tough for both of us.
She's going to come up here for my appointment with the geneticist though. She wants to see how it goes and be there for me. I certainly won't argue with her about it.
I also told her she needed to talk to the doctor about it. Although she's no "Indian Rubber Man", she has some symptoms, and our bodies are very similar in their misfunctioning ways. She has mitral valve prolapse, arthritis in many joints (more than a woman her age should, and she started having problems since before I could remember), she has pain and popping and rubbing in a lot of her joints, she has a bad elbow as of recently that 4 specialists (orthopedists, surgeons, and PT) could not determine a cause for (so they've done the most outlandish treatments they can think of for it, all in vain), colon/digestive issues that were chalked up to old age (but they shouldn't be starting in with the old age stuff when she was just 45). And I'm sure if we were face to face, we could compare a few others. So, she's going to talk to Bubba (family doc). I'm sure she's going to spend more time talking about me than herself, but as long as she mentions it, he'll do the rest of the work for her.
It's starting to sink in now. Might even be a little scary. Like, I may go through this with my own kids someday. That part scares me.
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