I suck at updates, we get that, right?

So, me and my GI (and neuro, through my GI) are working on things for my gut. He's a bit reluctant still to do the J-tube, but he's not knocking it off the list. He just wants to make sure we've figured everything else out before punching a hole in my gut. I respect that.

I was on the phone a lot today with his medical assistant trying to set up appointments. We're still working that out because she misinterpreted his notes and thought he wanted a different test. That's okay, we got it straight. She's getting the right procedure ordered for me now.

In the meantime, I'm going to try to start keeping a food journal again along with monitoring my weight. Past experience has taught me that I can't do this religiously, but I can get a good idea.

Like today for instance, (which is very similar to any other day for me as of late) I had approximately 500 calories, including the calories I drank. Between the choking, feeling full early, nausea, and all the other gut stuff, I just can't eat enough. I have been drinking better this week though. I have been drinking water finally...something I hadn't really done since my hospital stay (it wasn't tasting right, and when I was filling up so fast, I wanted my intake to count toward my caloric intake). But I'm drinking better this week. I managed to make it well over a liter without a problem. That felt good.

So, hopefully we can get the swallow eval underway soon. Depending on the results of that, a neuromuscular eval is next on the list. I don't know what's after that. But I'm hoping a discussion about J-tubes follows soon after. Because I would really like to get my tube and get to pumping my body full of fluids and nutrition with less fight. I want to gain weight again (I'm down to 113 right now, which is down a few from the steady 118 I had been holding, and 118 is down from the 125 I was at 2 years ago...I haven't seen that number in a long time).

Only time will tell. I'm still hanging in there though.

And still waiting on my skin biopsy for EDS. It's a good thing I'm not in a hurry. Sheesh. I know that the biopsy may tell me nothing, but I still wish it would be done and over with already.

Okay, my puppy is getting all kinds of bonkers and I'm stoned from my Klonopin and Lyrica bedtime tag team so I'm going to let the spaz out to pee then we're heading to bed (whether he likes it or not, because I have to be up at 5).

Night all!